Kure for Kam Kam lays on the family’s golden lab, Dextar or “dexy” after getting his diaper changed, Monday, Feb. 25, 2019 at the family’s home in Selma, Ind. Dextar will soon be sent to Conifer Canine, a training facility for two month. Afterwards he will function as a therapy dog for Kameron. Kam’s grandparents watch as Amanda helps Kam as he walks towards Keith at their home in Selma, IN Monday, Feb. 25, 2019. Kameron holds onto the tubes containing his panhemitan infusion Tuesday, March 4, 2019 at Riley Children’s Hospital in Indianapolis. Panhemitan is a trial drug to see Kam will gain any cognitive or physical abilities. He will receive the infusion once a week for twelve weeks. Amanda puts her hand up for a high five, but Kam misses, Friday Feb. 22, 2019 during therapy at Meridian Health Services in Muncie, IN. The therapy at Meridian focuses on Kam’s physical and cognitive development through activities like picking up objects, responding to colors and walking in a stroller. Amanda Kisses Kam as he throws a fit after she puts him in his car seat so that they can go home Monday, March 3, 2019. Every Monday Kam does therapy in Carmel, IN to work on gaining strength to sit up on his own. While waiting in the hallway for a therapist to come get them, Kam looks at Amanda as she tickles him Friday, Feb. 22, 2019 at Meridian Health Services in Muncie, Ind. Kam gets upset while trying to walk at therapy in Muncie, Ind. Feb. 22, 2019. Amanda hops out of bed for a nurse to do an x-ray on Kam’s chest at 2:00AM Sunday, April 7, 2019. The family went to Riley Hospital for Children after Kam spiked a fever which is life threatening to him. Amanda carries Kam into their house in Selma, Ind. Thursday, March 21, 2019, after speaking on a panel about Rare Diseases hosted by Ball State University.